Lupus Australia, Queensland Inc

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What Is Lupus?

SLE (Systemic Lupus Erythematosus), or simply lupus, is a treatable, chronic, inflammatory, auto-immune disease. When you have lupus, your body's defence mechanism - your immune system goes into overdrive and starts to attack certain body organs. Lupus is not contagious or infectious or imagined.

What are the symptoms?

Lupus has many symptoms which take an irregular course of remissions (symptom-free cycles) and flare-ups.
Symptoms may include extreme fatigue, joint and muscle pain, facial rashes, headaches, fever, sun
sensitivity, hair loss, depression, mouth ulcers and eye problems. Like many people with lupus, you may often look perfectly healthy, but feel terrible.

What is the cause?

Until research scientists fully understand how the immune system works, the cause of lupus will remain unknown.However, lupus may be triggered by puberty, exposure to sunlight, menopause, childbirth, trauma, certain medications and viral infection.

What now

Lupus will impact your life and the lives of your family and friends. Lupus is very individual and uncertain. This adds to the stress of coping with and managing this disorder. You need to remain positive, maintain a sense of humour, learn about your illness, participate in medical management and balance your lifestyle. But you are not alone

And the cure

Lupus is a chronic illness - it will never go away. To date, there is no cure for lupus. But this does not mean that you will never be well again, or that the pain will never go away. You will probably require continual medical care and/or medication. Of course, like anyone else, you will need to balance your lifestyle and your diet.

With today's technology - improved diagnostic tests and medication - you can anticipate a near normal life span. However, having lupus means adjusting your lifestyle.

 

 

Updates

US approves Lupus drug

The first new treatment for lupus in half a century has won US approval, a milestone for patients with the disabling disease and a potential blockbuster for tiny biotech company Human Genome Sciences.

Health officials cleared Benlysta for certain patients with active lupus who are receiving standard therapy. The disease causes the immune system to attack joints and organs and has proved tough to study and treat. Human Genome will split profits from the drug with GlaxoSmithKline.

The Food and Drug Administration says black patients "did not appear to respond to treatment" in clinical trials. The company will run another study to further examine safety and effectiveness in black patients to address that concern, the agency said. Benlysta's annual global sales may top $3 billion in 2015, according to Thomson Reuters consensus forecasts.

Adapted from ABC News

Lupus Booklet


A nineteen page booklet filled with stories and poems written by people who have lupus

Including a foreword written by Dr Carola G Vinuesa and Dr Matthew Cook, research scientists who are looking at the causes of lupus.

Contact us if you are interested in purchasing this interesting little book


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Sat Oct 13 @09:00 - 11:00AM
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